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Camp Hemotion

An annual week-long residential summer camp serving approximately 100 young people, ages 7-20, living with bleeding disorders, known carriers, and their siblings. One of the first camps to focus on this constituency in the country, Camp Hemotion is widely recognized as a model program.

In its over 40 years of existence, Camp Hemotion has served as HFNC's primary way to reach young people and provide them with the tools they need to overcome the challenges presented them by their illness and lead healthy, vibrant and, importantly, full lives. Specific strategies employed during the Camp session to bring about these outcomes include: Self-infusion training - medical professionals help campers learn how to mix their own medicine and inject intravenously into their arm or hand as easily, painlessly and effectively as possible. This is an important right of passage for children with Hemophilia as most often their parents have performed this task since they were infants. Learning self infusion is a critical step toward independence, as the intravenous medication is required sometimes as often as daily to sustain life for people with hemophilia.

2020 information

Dear Community, 

It is with a heavy heart that we write to you about our 2020 Camp Hemotion.  Unfortunately, after several conversations with our infirmary team, our HFNC Medical Advisor (Marion Koerper, MD), and our camp planning team, we have made the very difficult decision to cancel Camp Hemotion for 2020.  With the uncertainty of being able to keep our volunteers and campers safe we felt it was the right decision.  We know that this is a very tough and emotional time for all of us. Your health and well-being is foremost on our minds as we navigate down this unprecedented path. 

 

Questions and Answers re cancellation of 2020 Camp Hemotion

Question:  Will Camp be rescheduled this year?

Answer: Unfortunately, no.  We did explore several options, but there was no suitable alternative date in 2020. 

Question:  Do we know when Camp will be held in 2021?

Answer: Yes, June 12-19, 2021.  We are still checking with staff to ensure that everyone is available.

Question:  Are there any alternative events planned that would allow campers and staff to get together?

Answer: Yes.  It might be some time before we can get together physically, but we are going to have a virtual campfire on Friday, June 19, 2020.  We will also be having a special “Camp Hemotion Reunion Tent” at our October 4, 2020 Unite for Bleeding Disorders Walk.  Stay tuned for more details!

Question:  What if I paid for Camp already?

Answer: You have two choices:  One, you can receive a full refund by emailing Bryan Anderson and letting him know your decision.  Refunds take approximately two to three weeks from the date received.  Or you may choose to have your fee rolled over to 2021 Camp Hemotion.  If we do not hear from you, we will assume that you wish to roll it over.

 

If you have any other questions or concerns you can reach us by phone 510-658-3324  9:30am – 4:30pm  Monday – Friday or by email

bryan.anderson@hemofoundation.org

ashley.gregory@hemofoundation.org

dawn.pollard@hemofoundation.org

 

We hope we will get to see you all very soon!

With gratitude,
HFNC Staff and Board   

 

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