The Hemophilia Foundation of Northern California (HFNC) serves families with life-threatening bleeding disorders, factor deficiencies, and rare clotting conditions. Learn more and get involved.
Join YOUR community, bring YOUR TEAM and raise funds as we celebrate our goals at Unite for Bleeding Disorders WALK! Check out our new location with an all abilities children's playground, nature area, garden center, skate park, trail connections and lots more! Parking is easy in this modern facility. Register HERE!
¡Únase a SU comunidad, traiga a SU EQUIPO y recaude fondos mientras celebramos nuestras metas en la CAMINATA Unite for Bleeding Disorders! Echa un vistazo a nuestra nueva ubicación con un parque infantil para todos los niveles, un área natural, un centro de jardinería, un parque de patinaje, conexiones de senderos y mucho más. El estacionamiento es fácil en esta moderna instalación. Registrarse aqui!
Join YOUR community, bring YOUR TEAM and raise funds as we celebrate our goals at Unite for Bleeding Disorders WALK! Check out our new location with an all abilities children's playground, nature area, garden center, skate park, trail connections and lots more! Parking is easy in this modern facility.
HFNC & HemaBiologics invite you to dinner and education in San Jose! Enjoy a presentation by Dr. Guy Young from Hemostasis and Thrombosis Center at Children's Hospital Los Angeles while you connect with YOUR bleeding disorders community. Topic: Treatment options for Hemophilia patients A and B older than 12 with inhibitors. Everyone is welcome!
HFNC & Spark Therapeutics invite you to dinner and education! Topic: "
“Understanding the Immune System and Its Relationship to Gene Therapy”: Join us to dive deeper into understanding investigational gene therapy. We’ll review how gene therapy is designed to work for hemophilia, introduce you to the main characters of the immune system, and take a look at how the immune system works in the context of gene therapy (available in English)."
¡HFNC y Spark Therapeutics te invitan a cenar y recibir educación! Tema: “Comprensión del sistema inmunológico y su relación con la terapia génica”: Únase a nosotros para profundizar en la comprensión de la terapia génica en investigación. Revisaremos cómo está diseñada la terapia génica para tratar la hemofilia, le presentaremos los personajes principales del sistema inmunológico y veremos cómo funciona el sistema inmunológico en el contexto de la terapia génica (disponible en inglés)".
Hemophilia Foundation of Northern California is hosting a board meeting in person. Community members that live in our service counties (see list below) are welcome to register to attend. You MUST LIVE in one of our SERVICE COUNTIES to be considered to attend. You must register if you plan to attend so we may count you in for lunch. We regret we are unable to provide child care and thank you for not bringing children.
HFNC COUNTIES: Del Norte, Humboldt, Trinity, Mendocino, Lake, Sonoma, Napa, Marin, Solano, San Francisco, Contra Costa, Alameda, San Mateo, Santa Clara, Santa Cruz, San Benito, Monterey, Fresno, Kings, Tulare
Learn about the newest therapies out there for you! Keynote speaker: Andrew Leavitt MD, UCSF Hemophilia Treatment Center Director. Presentations from experts detailing how the newest medications work. Hemophilia Council of California will share how to access these new therapies. Industry partners will be there to share information with you about products and services that can be of support to you. Opportunity to ask questions and share experiences. Lunch and beverages provided. Children's activity corner and kit for each registered child! Opportunities to win gift cards! Enjoy community time in a fun environment at OakStop while learning and having lunch. We welcome everyone to this English/Spanish event.
¡Aprenda sobre las terapias más nuevas que existen para usted! Orador principal: Andrew Leavitt MD, Director del Centro de Tratamiento de Hemofilia de UCSF. Presentaciones de expertos que detallan cómo funcionan los medicamentos más nuevos. El Consejo de Hemofilia de California compartirá cómo acceder a estas nuevas terapias. Los socios de la industria estarán allí para compartir información con usted sobre productos y servicios que pueden ser de ayuda para usted. Oportunidad de hacer preguntas y compartir experiencias. Almuerzo y bebidas proporcionadas. Rincón de actividades infantiles y kit para cada niño inscrito! ¡Oportunidades de ganar tarjetas de regalo! Disfrute del tiempo comunitario en un ambiente divertido en OakStop mientras aprende y almuerza. Damos la bienvenida a todos a este evento en inglés/español.
Celebrate winter and the holidays with your bleeding disorders community! Enjoy food, community, games and Special Guest Santa as we spend time in a festive setting. Parents & guardians, please see the gift registration form and complete in order for children to receive a gift from Santa. Please call 510-658-3324 or email ashley.gregory@hemofoundation.org to be put on our list.
Celebrate winter and the holidays with your bleeding disorders community! Enjoy food, community, games and Special Guest Santa as we spend time in a festive setting. Parents & guardians, please see the gift registration form and complete in order for children to receive a gift from Santa. Please call 510-658-3324 or email ashley.gregory@hemofoundation.org to be put on our list.
The Hemophilia Council of California’s (HCC’s) Future Leaders Program provides leadership training and advocacy tools for teens and young adults affected by bleeding disorders. Leading up to annual Legislative Day, Future Leaders gain understanding and skills on their role in the government process, insurance and programs that support care, educational opportunities, and how to be an effective advocate. Participants hear from statewide and national healthcare leaders, learn self-reliance, connect with their peers, meet with legislators at the State Capitol, have fun and find inspiration to share their voice where it matters most.
Applications For The 2024 Future Leaders Program Are Now Open!
HCC’s Future Leaders Program provides leadership training and develops advocacy skills for teens affected by bleeding disorders. Leading up to Legislative Day on March 18 they find out more about their role in the government process.
Future Leaders attend an in person pre-Legislative Day program on March 16 and 17 where they learn how to tell their stories to legislators, advocate for themselves and their families, and take part in leadership and team building activities. Most importantly, teens learn about the legislative process and how it affects them.
During Legislative Day, Future Leaders take a lead role in legislative meetings and advocate for important legislation that affects them at the State level.
On the morning of March 19 before leaving Sacramento, Future Leaders gather and share their Legislative Day experiences and discuss how to keep advocating for the rest of the year.
Requirements to Apply:
Applicants must be a high school student (Grades 9-12) at the time of the program.
Applicants must have a bleeding disorder or be a sibling or child of a person with a bleeding disorder.
Applicants must be able to commit to participating in all parts of the program.
APPLY TODAY!
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