The Hemophilia Foundation of Northern California (HFNC) serves families with life-threatening bleeding disorders, factor deficiencies, and rare clotting conditions. Learn more and get involved.
HFNC's 2023 Unite for Bleeding Disorders Walk has passed but you can still donate!
Celebrate winter and the holidays with your bleeding disorders community! Enjoy food, community, games and Special Guest Santa as we spend time in a festive setting. Parents & guardians, please see the gift registration form and complete in order for children to receive a gift from Santa. Please call 510-658-3324 or email ashley.gregory@hemofoundation.org to be put on our list.
HFNC's first Men's Meetup for males and those that identify with a bleeding disorder. Ages 18+ will enjoy an afternoon with brothers as you hit balls from the bays at Topgolf, San Jose's premiere location for your golfing fun. Learn K-Taping from Dr. Mike Zolotnitsky and Octapharma, our sponsor. This event and dinner is free. There is no childcare, please make other arrangements. You must be registered for this event prior to attending.
La primera reunión de hombres de HFNC para hombres y aquellos que se identifican con un trastorno hemorrágico. Los mayores de 18 años disfrutarán de una tarde con hermanos mientras golpean bolas desde las bahías en Topgolf, el principal lugar de San José para divertirse jugando al golf. Aprenda K-Taping del Dr. Mike Zolotnitsky y Octapharma, nuestro patrocinador. Este evento y cena son gratuitos. No hay cuidado de niños, por favor haga otros arreglos. Debes estar registrado para este evento antes de asistir.
Become educated about bleeding disorders in a retreat setting with women, girls and those assigned female at birth that are in the bleeding disorders community. Our motto is 'Affected and Connected' and all in our community are welcome. Ages 12-18 must be accompanied by a parent/guardian. This is a true retreat space where quiet and introspection are encouraged in a setting located on the cliffs of Santa Cruz, California. There are limited spaces for this boutique event you won't want to miss. Education is provided by our local Hemophilia Treatment Center treatment team. Activities include infusion training, campfire, middle eastern dancing, crafts, teen track and more. Locally sourced, fresh whole organic fare is served. If you have any type of food restriction or allergy, please plan to provide for your meals as they do not accommodate dietary restrictions at this location. We apologize for any inconvenience this may cause but when you see the venue, you will see why we couldn't pass it up. You will hear the waves crashing when you sleep at night. Plenty of parking and time for visiting with others. Sand play is encouraged.
Infórmese sobre los trastornos de la coagulación en un entorno de retiro con mujeres, niñas y mujeres asignadas al nacer que pertenecen a la comunidad de trastornos de la coagulación. Nuestro lema es "Afectados y conectados" y todos en nuestra comunidad son bienvenidos. Los niños de 12 a 18 años deben estar acompañados por un padre/tutor. Este es un verdadero espacio de retiro donde se fomenta la tranquilidad y la introspección en un entorno ubicado en los acantilados de Santa Cruz, California. Hay espacios limitados para este evento boutique que no querrás perderte. La educación la brinda nuestro equipo de tratamiento local del Centro de tratamiento de hemofilia. Las actividades incluyen entrenamiento de infusión, fogatas, bailes del Medio Oriente, manualidades, pista para adolescentes y más. Se sirve comida orgánica integral, fresca y de origen local. Si tiene algún tipo de restricción alimentaria o alergia, planee preparar sus comidas, ya que no se adaptan a restricciones dietéticas en este lugar. Pedimos disculpas por cualquier inconveniente que esto pueda causar, pero cuando veas el lugar, verás por qué no podíamos dejarlo pasar. Oirás las olas rompiendo cuando duermas por la noche. Mucho estacionamiento y tiempo para visitar a otros. Se fomenta el juego en la arena.
The Hemophilia Council of California’s (HCC’s) Future Leaders Program provides leadership training and advocacy tools for teens and young adults affected by bleeding disorders. Leading up to annual Legislative Day, Future Leaders gain understanding and skills on their role in the government process, insurance and programs that support care, educational opportunities, and how to be an effective advocate. Participants hear from statewide and national healthcare leaders, learn self-reliance, connect with their peers, meet with legislators at the State Capitol, have fun and find inspiration to share their voice where it matters most.
Applications For The 2024 Future Leaders Program Are Now Open!
HCC’s Future Leaders Program provides leadership training and develops advocacy skills for teens affected by bleeding disorders. Leading up to Legislative Day on March 18 they find out more about their role in the government process.
Future Leaders attend an in person pre-Legislative Day program on March 16 and 17 where they learn how to tell their stories to legislators, advocate for themselves and their families, and take part in leadership and team building activities. Most importantly, teens learn about the legislative process and how it affects them.
During Legislative Day, Future Leaders take a lead role in legislative meetings and advocate for important legislation that affects them at the State level.
On the morning of March 19 before leaving Sacramento, Future Leaders gather and share their Legislative Day experiences and discuss how to keep advocating for the rest of the year.
Requirements to Apply:
Applicants must be a high school student (Grades 9-12) at the time of the program.
Applicants must have a bleeding disorder or be a sibling or child of a person with a bleeding disorder.
Applicants must be able to commit to participating in all parts of the program.
APPLY TODAY!
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