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Important Coronavirus (COVID-19) Update

As we navigate the current health crisis together, our primary concern is, and has always been, the health and wellness of the individuals, families and communities that we serve.

In this unprecedented moment, being connected with each other is more important than ever. While we may be practicing social distancing, staying healthy means not falling into an unhealthy pattern of social isolation. Taking care of our emotional well-being, prioritizing self-care and staying engaged with the important people in your life are among the most critical things we can do during this time.

Read our past email updates

Everyone should take the following routine precautions to safeguard themselves from all germs and viruses.

  • Stay home (except to get food, care for a relative or friend, get necessary health care, or go to an essential job)
  • Physical distancing, as recommended by the CDC and other health organizations.
  • Avoid contact with sick people
  • Avoid touching your eyes, nose, or mouth with unwashed hands
  • Clean your hands often by washing them with soap and water for at least 20 seconds or using an alcohol-based hand sanitizer that contains 60%–95% alcohol. Soap and water should be used if hands are visibly dirty. It is especially important to clean hands after going to the bathroom; before eating; and after coughing, sneezing or blowing your nose.
     

Specific Risks of COVID-19 to the Bleeding Disorders Community from WHF

IF YOU THINK YOU MAY HAVE CORONAVIRUS (COVID-19)?

Call ahead to a healthcare professional if you develop a fever and symptoms of respiratory illness, such as cough or difficulty breathing, and have been in close contact with a person known to have COVID-19 or if you live in or have recently traveled to an area with ongoing spread. Tell your healthcare professional about your recent travel or contact. Your healthcare professional will work with your state’s public health department and the CDC to determine if you need to be tested for COVID-19. The CDC’s website is the best source for information on this subject.

For more great resources and information check out HFA's COVID-19 resource page.

As people are urged by state and local governments and departments of health to self-isolate or quarantine, people who use factor may have questions about their in-home supply.  NHF will be posting all communications from pharmaceutical companies regarding any potential affects that the COVID-19 pandemic could have on the manufacture and distribution of their products. If you have any questions about your particular product, we urge to you contact your physician or your pharmacy provider directly.  Read the statements from pharmaceutical companies.

We encourage you to use the resources at the CALIFORNIA STATE COVID-19 WEBSITE.

The California State Public Health Officer and Director of the California Department of Public Health is ordering all individuals living in the State of California to stay home or at their place of residence.  Everyone is required to stay home except to get food, care for a relative or friend, get necessary health care, or go to an essential job. If you go out, keep at least 6 feet of distance.  Learn more.

Laid off or need family leave? Check out California's Employment Development Department site for info on how to apply for unemployment, family leave, and disability.  

The outbreak of coronavirus may be stressful for people. Fear and anxiety about a COVID-19 can be overwhelming and cause strong emotions in adults and children. Coping with stress will make you, the people you care about, and your community stronger.  Everyone reacts differently to stressful situations.  How you respond to the outbreak can depend on your background, the things that make you different from other people, and  the community you live in. Check out the CDC's page on Managing Stress and Anxiety.  

HFNC Upcoming Events

California is sheltering in place through May 3.  This order may also be extended.  Also The CDC has recommended that all gatherings over 50 people should be canceled or postponed. As a result, many HFNC events are being postponed, cancelled, or moved to a virtual format. More information will be provided as we reschedule these events.

The following events are postponed:

  • Emerging Therapies Forum (rescheduled for July 19) Sign Up
  • Community Crab Feed (TBD)
  • Family Education Day (rescheduled for October 18) Sign Up
  • Bleaders (TBD)
  • Unite for Bleeding Disorders Walk (May 17 is now a special online Come Together Event!)
  • Camp Hemotion (Cancelled | Stay tuned for information about a virtual camp fire TBD)
  • Vines and Hops (rescheduled for November 15)

Webinars

We are working to launch a new online and interactive initiative in which we will host a live webinar or group video hangout about various topics. 

  • Q&A with UCSF Hemophilia Treatment Center Staff  |  April 7th 12:30pm-1:30pm.   WATCH VIDEO
  • World Hemophilia Day Trivia Night!  |  April 17th 7:00pm-8:30pm.  
  • Bleaders Hang Out and Mafia Party  |  May 1st 9:00pm-10:00pm.
  • Give It a Shot: Hemlibra  |  May 6th 6:00pm-7:00pm.
  • More coming soon!

Supporting Community Members

HFNC provides $20,000 in emergency financial assistance to community members in need every year. This year, we expect a significant increase in the need for assistance.  We are currently reviewing our program guidelines to ensure assistance is available to community members during this challenging time. 

Several people have asked how they can donate to community members who are struggling during this difficult time. Donations can be made below. All donations go toward supporting bleeding disorder families in need and those who request emergency financial assistance throughout Northern California. Please help us make sure that our family members who need it most are not alone during this tough time.

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Your security code is the 3-digit code at the end of the signature field on your card's back.

American Express® cardholders
Your security code is the 4-digit code located above the actual credit card number on your card's front.

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