Important Coronavirus (COVID-19) Updates
Covered California is currently in open enrollment due to the COVID-19 epidemic. Deadline to enroll in new coverage is May 15th. You may be able to get help with your monthly payments, or if eligible, receive free or low-cost coverage through Medi-Cal. It is the same application for a Covered California plan and for Medi-Cal.
To find plans and apply, visit https://www.coveredca.com/
California’s Emergency Rental Assistance Program seeks to distribute money to landlords and tenants financially impacted by COVID-19. The funds are available on a first-come-first-serve basis and applications will be processed until the funds runs out.
Online Application: Housingiskey.com
As of March 15th, California Department of Public Health has included those 16 and up with high risk medical conditions, disabilities and illnesses in COVID-19 vaccine eligibility. This includes all patients who are enrolled in either the Genetically Handicapped Persons Program (GHPP) or California Children's Services (CCS) who are aged 16 and up. READ THE FULL BULLETIN
While you may now be eligible, vaccine supply continues to be an issue in some communities - check the state's vaccine website for more information. Each county public health department has their own list of vaccine sites on their webpage.
Additionally, HFNC does not provide medical advice and encourages you to consult with your hematologist or primary care doctor regarding all medical decisions.
HFNC STATEMENT ON COVID-19 VACCINE
March 25, 2021
In May 2020, As HFNC Medical Advisor and Camp Hemotion Medical Director, I made the difficult decision to cancel Camp Hemotion for the summer of 2020 due to the Covid-19 pandemic. That pandemic still exists and continues to kill people daily. In person Camp Hemotion will not be held until the number of COVID-19 infections in Northern California drops dramatically. Camp Hemotion 2021 will be held virtually June 13-19....READ THE FULL LETTER HERE
THE CENTER FOR DISEASE CONTROL AND PREVENTION (CDC) HAS RELEASED GUIDANCE FOR PEOPLE WHO ARE FULLY VACCINATED
COVID-19 VACCINATION GUIDANCE FOR PEOPLE WITH BLEEDING DISORDERS
Guidance from the World Federation of Hemophilia (WFH), European Association for Haemophilia and Allied Disorders (EAHAD), European Haemophilia Consortium (EHC), and U.S. National Hemophilia Foundation (NHF). READ GUIDELINES HERE
The National Hemophilia Foundation also published a frequently asked questions article for people with bleeding disorders. READ THE FAQs FROM NHF
Watch HFA’s COVID-19 Vaccine Forum from January:
Hemophilia Federation of America organizó este Foro sobre la vacuna COVID-19 con expertos:
The best way to prevent illness is to avoid being exposed to this virus. The virus spreads mainly from person-to-person between people who are in close contact with one another (within about 6 feet). This occurs by respiratory droplets produced when an infected person coughs or sneezes. These droplets can land in the mouths or noses of people who are nearby or possibly be inhaled into the lungs. Surfaces can also get infected. Older adults and people who have severe underlying medical conditions like hypertension, obesity, heart or lung disease , diabetes or asthma seem to be at higher risk for developing more serious complications from COVID-19 illness. Every person has a role to play. So much of protecting yourself and your family comes down to common sense:
Stay home except for essential needs/activities.
Practice physical distancing – stay 6 feet away from people.
Wear a cloth face mask if you leave home - READ THE CDPH GUIDANCE ON MASKS
Wash hands with soap and water for at least 20 seconds.
Clean and disinfect frequently touched surfaces daily. If surfaces are dirty, clean them using detergent or soap and water prior to disinfection.
Avoid touching eyes, nose or mouth.
Cover your cough or sneeze with a tissue or your elbow or a tissue. Wash hands afterwards.
Avoiding close contact with people who are sick.
Stay home and away from people if you become sick with respiratory symptoms like fever and cough.
If you smoke or vape, consider quitting. Smoking and vaping causes harm to the lungs.
Follow guidance from public health officials.
Please consult with your health care provider about additional steps you may be able to take to protect yourself
IF YOU THINK YOU MAY HAVE CORONAVIRUS (COVID-19)?
Call ahead to a healthcare professional if you develop a fever and symptoms of respiratory illness, such as cough or difficulty breathing, and have been in close contact with a person known to have COVID-19 or if you live in or have recently traveled to an area with ongoing spread. Tell your healthcare professional about your recent travel or contact. Your healthcare professional will work with your state’s public health department and the CDC to determine if you need to be tested for COVID-19. The CDC’s website is the best source for information on this subject.
For more great resources and information check out HFA's COVID-19 resource page.
As people are urged by state and local governments and departments of health to self-isolate or quarantine, people who use factor may have questions about their in-home supply. NHF will be posting all communications from pharmaceutical companies regarding any potential affects that the COVID-19 pandemic could have on the manufacture and distribution of their products. If you have any questions about your particular product, we urge to you contact your physician or your pharmacy provider directly. Read the statements from pharmaceutical companies.
We encourage you to use the resources at the CALIFORNIA STATE COVID-19 WEBSITE.
LAID OFF OR NEED FAMILY LEAVE?
Check out California's Employment Development Department site for info on how to apply for unemployment, family leave, and disability.
The outbreak of coronavirus may be stressful for people. Fear and anxiety about a COVID-19 can be overwhelming and cause strong emotions in adults and children. Coping with stress will make you, the people you care about, and your community stronger. Everyone reacts differently to stressful situations. How you respond to the outbreak can depend on your background, the things that make you different from other people, and the community you live in. Check out the CDC's page on Managing Stress and Anxiety.
VON WILLEBRAND FACTOR AND COVID-19?
Dr. Valentino, President and CEO of the National Hemophilia Foundation wrote an article on the subject.
"Recently, there has been considerable interest in the role von Willebrand Factor (VWF) may play in the complications of COVID-19, the infection caused by SARS-CoV-2..." READ THE ENTIRE LETTER
Supporting Community Members
HFNC provides $20,000 in emergency financial assistance to community members in need every year. This year, we expect a significant increase in the need for assistance. We are currently reviewing our program guidelines to ensure assistance is available to community members during this challenging time.
Several people have asked how they can donate to community members who are struggling during this difficult time. Donations can be made below. All donations go toward supporting bleeding disorder families in need and those who request emergency financial assistance throughout Northern California. Please help us make sure that our family members who need it most are not alone during this tough time.