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Event Calendar

Join Men and those that identify as male with Bleeding Disorders at Topgolf with HFNC/NCBDF and BioMarin. Susan Ackbury from BioMarin will present and Mosi Williams, MSW, will join you as facilitator as you learn about gene therapy, rap, eat and tee off! There is room for 20 in this event. Ages 18+. There is no childcare available. You must be registered to attend this event. Thank you for your understanding.

Únete a los hombres con trastornos hemorrágicos en Topgolf con HFNC/NCBDF y BioMarin. Susan Ackbury, de BioMarin, y Mosi Williams, MSW, se unirán a usted como facilitadoras mientras aprende sobre la terapia génica, rapea, come y juega al golf. Hay sitio para 20 en este evento sólo para hombres con trastornos hemorrágicos. Edades 18+. No hay servicio de guardería disponible. Usted debe estar registrado para asistir a este evento. Gracias por su comprensión.

You are invited to Dinner and Education about how immune systems are impacted by gene therapy. You must be registered for this event to attend. We thank you for your understanding. This event is in Spanish.

Le invitamos a cenar y a recibir formación sobre el impacto de la terapia génica en el sistema inmunitario. Debe estar inscrito en este evento para poder asistir. Le agradecemos su comprensión. La programe es en Espanol.

Sunday, June 23, 2024Saturday, June 29, 2024
Camp Oakhurst, Coarsegold CA

Camp Hemotion is Northern California's award winning summer camp for children in the bleeding disorders community. Siblings, children, cousins etc are welcome to apply. No child is ever turned away due to inability to pay (must live in HFNC or Central California Hemophilia Foundation service area to qualify for reduced admission). Expert medical staff guide and care for the campers and staff the entire time.
Camp Hemotion es el campamento de verano galardonado del norte de California para niños en la comunidad de trastornos hemorrágicos. Pueden aplicar hermanos, hijos, primos, etc. Ningún niño es rechazado por no poder pagar (debe vivir en HFNC o en el área de servicio de la Fundación de Hemofilia de California Central para calificar para admisión reducida). Personal médico experto guía y atiende a campistas y personal en todo momento. El registro se abrirá pronto, ¡estén atentos para el anuncio!

Friday, September 6, 20244:00 pmSunday, September 8, 20249:30 am
Anaheim, California

¡Registración para Familia de Sangre YA ESTÁ ABIERTA!

Acompáñenos en la conferencia sobre trastornos hemorrágicos de habla hispana más grande del país. Regístrese antes del 30 de junio para precios “Early Bird.”
Para obtener más información e inscribirse, visite: www.familiadesangre.org

Precios de inscripción
La inscripción “Early Bird”: 1 de mayo al 30 de junio
(Precio por edad basado en la entrada de Disneyland)

Adultos (edades de 10+): $89
Niños (edades de 3-9): $59
Bebes (edades de 0-2): Gratis

Las inscripciones regulares: 1 de julio al 9 de agosto
(Precio por edad basado en la entrada de Disneyland)

Adultos (edades de 10+): $99
Niños (edades de 3-9): $69
Bebes (edades de 0-2): Gratis

Registration for Familia de Sangre is NOW OPEN!
Join us at the largest all Spanish speaking bleeding disorders conference in the nation. Register before June 30th for Early Bird pricing.
For more information and to register, please visit: www.familiadesangre.org

Registration Pricing
Early Bird Pricing: May 1st to June 30th
(Pricing age based on Disneyland ticket distribution)

Adults (ages 10+): $89
Children (ages 3-9): $59
Babies (ages 0-2): Free

Regular Pricing: July 1st to August 9th
(Pricing age based on Disneyland ticket distribution)

Adults (ages 10+): $99
Children (ages 3-9): $69
Babies (ages 0-2): Free

Join HFNC as we Unite for Bleeding Disorders at our largest fundraiser of each year! Start a team, tell your friends and family how important HFNC is to you and your community and ask them to support you! Meet on November 3 at Heather Farm Park in Walnut Creek to celebrate, meet other teams and community members and walk! We provide breakfast and lunch and you provide the fun! T-Shirts for $25 and over fundraising for each participant.

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