Advocacy

HFNC advocates for the needs and interests of people affected by bleeding disorders.  We partner with several organizations to ensure that all patients can benefit from access to treatment and care, blood safety, and more.  Also, our events and programs help empower individuals and families to become advocates themselves.  


HFNC is one of four California hemophilia organizations to form the Hemophilia Council of California (HCC). During the 1970s and late 80s, HCC incorporated as a 501(c)3 nonprofit organization to coordinate the shared advocacy agenda of creating a more effective and unified voice for individuals living with bleeding disorders in California.

Decades years later, HCC continues to pursue its mission to promote access to care and advance the quality of life for people with bleeding disorders through advocacy, education, and outreach in collaboration with our founding organizations.


Important Advocacy Dates

World Hemophilia Day is APRIL 17th

World Hemophilia Day is sponsored by the World Federation of Hemophilia (WFH).  Each year on April 17th WFH encourages the global bleeding disorders community to speak out. Efforts include reaching out to young members of the community to promote participation and develop leadership.

Bleeding Disorder month is MARCH

HFNC partners with the Hemophilia Federation of America (HFA), along with other organizations, to commemorate Marchas National Hemophilia Awareness Month. We encourage patients/families affected by a bleeding disorder to spread the word about Hemophilia Awareness Month. This could be a simple Facebook or Twitter post, giving presentations in schools, and/or sharing information with family and friends. Visit their website to learn more and to download valuable resources

NHF Washington Days is in MARCH

The National Hemophilia Foundation’s (NHF) Washington Days is the premiere advocacy event on Capitol Hill for the bleeding disorders community. Join those with bleeding disorders and their families to educate our elected officials about our unique needs. Washington Days is a great opportunity to have your voice heard, network with other families from around the country, and learn key issues affecting our community.

Patient Rights

MyPatientRights.org is an online resource to help patients identify when, why and how to file a complaint with their health plan and/or the DMHC to demand the care they need and deserve.


Blood Safety

For up-to-date Blood Safety Information click here and we recommend registering with the The Patient Notification System to stay informed.

  • Familia de Sangre registration is now open.

  • Camp Hemo Shire
  • UCD Camp Hemo

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