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Advocacy

Programs

HFNC advocates for the needs and interests of people affected by bleeding disorders.  We partner with several organizations to ensure that all patients can benefit from access to treatment and care, blood safety, and more.  Also, our events and programs help empower individuals and families to become advocates themselves.  

HFNC Advocacy Program

We are excited to share our advocacy efforts to declare March as Bleeding Disorders Awareness Month across Northern California!  With your help, we hope to raise awareness and money for our bleeding disorders community.  

As a community advocate you can make an impact in several ways:  

  • Red Ties or Aprons: The goal is to spark conversation and spread the word about Bleeding Disorders by asking local retailers and restaurants to wear red ties or aprons in March. 
    • Hemophilia Foundation of Northern California (HFNC) can provide: red ties, aprons, and educational materials paid for and shipped to you.
    • Your responsibility: Distribute red ties or aprons and educational brochures in late February or early March.
  • Local Restaurant Fundraisers: Dine and Dime throughout the month of March. 
    • HFNC can provide: templates for contacting restaurants.
    • Your responsibility: contact restaurants and coordinate fundraisers.
  • Declaration of March as Bleeding Disorders Awareness Month: Light up town hall red!  Local governments can declare March “Bleeding Disorders Awareness Month”
    • HFNC can provide: proclamation template.
    • Your responsibility: conduct research and coordinate with local government officials.
  • School “Wear Red” Days
    • Your responsibility: provide educational materials to schools and work with school administration

We are also excited to share facts, figures, and resources on the Hemophilia Foundation of Northern California’s social media throughout the month of March. However, the success of our first-ever advocacy effort of this type is largely dependent on you as the community advocates. Here’s what we are asking:

Fill out the form below.  Once we receive your response, we can get to work on ordering supplies, such as aprons or ties, and will be able to follow up with additional resources.  Let's get started in making March as Bleeding Disorders Awareness Month a huge success!

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HFNC is one of four California hemophilia organizations to form the Hemophilia Council of California (HCC). During the 1970s and late 80s, HCC incorporated as a 501(c)3 nonprofit organization to coordinate the shared advocacy agenda of creating a more effective and unified voice for individuals living with bleeding disorders in California.

Decades years later, HCC continues to pursue its mission to promote access to care and advance the quality of life for people with bleeding disorders through advocacy, education, and outreach in collaboration with our founding organizations.

Important Advocacy Dates

World Hemophilia Day is APRIL 17th

World Hemophilia Day is sponsored by the World Federation of Hemophilia (WFH).  Each year on April 17th WFH encourages the global bleeding disorders community to speak out. Efforts include reaching out to young members of the community to promote participation and develop leadership.

Bleeding Disorder month is MARCH

HFNC partners with the our national partners, along with other organizations, to commemorate March as National Bleeding Disorders Awareness Month. We encourage patients/families affected by a bleeding disorder to spread the word about Bleeding Disorder Awareness Month. This could be a simple Facebook or Twitter post, giving presentations in schools, and/or sharing information with family and friends. Visit their website to learn more and to download valuable resources

NHF Washington Days

The National Hemophilia Foundation’s (NHF) Washington Days is the premiere advocacy event on Capitol Hill for the bleeding disorders community. Join those with bleeding disorders and their families to educate our elected officials about our unique needs. Washington Days is a great opportunity to have your voice heard, network with other families from around the country, and learn key issues affecting our community.

Patient Rights

MyPatientRights.org is an online resource to help patients identify when, why and how to file a complaint with their health plan and/or the DMHC to demand the care they need and deserve.

Blood Safety

For up-to-date Blood Safety Information click here and we recommend registering with the The Patient Notification System to stay informed.

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