Bleeding Disorder Related Websites

 

 

Product Related Websites:

Bruz Wear Padded Clothing for Kids created by the mom of a son with severe Hemophilia A. Proceeds from each and every sale benefit the bleeding disorder community

http://www.bruzwear.com/ 

Bleeding Disorders Web Sites:

Hematologic Blood Disorders Branch of the Centers for Disease Control and Prevention

http://www.cdc.gov/ncbddd/hbd/

allaboutbeeding.com (von Willebrand disease)
www.allaboutbleeding.com

Bloodline
www.bloodline.net

Centers for Disease Control and Prevention (Spanish-language site)
www.cdc.gov/spanish

The Coalition for Hemophilia B
www.boygenius.com/cfb/

The Haemophilia Society (United Kingdom)
www.haemophilia.org.uk/

Hemophilia Forum
www.hemophilia-forum.org

Hemophilia Region IX
www.hemophiliaregion9.org

LA Kelley Communications
www.kelleycom.com

World Federation of Hemophilia
www.wfh.org

 

 Hepatitis Web Sites:

Hep C Connection
www.hepc-connection.org

Hepatitis B Foundation
www2.hepb.org


Hepatitis C Forum--International
http://hepatitis-c.de

Hepatitis Central
http://hepatitis-central.com

Hepatitis Information Center
http://members.tripod.com/hepatitisinfo/index.html

HepNet: Hepatitis Information Network
www.hepnet.com


National Hepatitis C Coalition, Inc.
http://nationalhepatitis-c.org

HIV/AIDS Web Sites:

AEGIS (AIDS Education Global Information System)
www.aegis.com


AIDS Info
www.aidsinfo.nih.gov

HIV and Hemophilia
www.hivpositive.com/f-HIVyou/f-Hemophilia/3-HemoSubMenu.html


HIV and Hepatitis
www.hivandhepatitis.com/index.html


HIV Insite
http://hivinsite.ucsf.edu/InSite

National AIDS Treatment Advocacy Project
www.natap.org

 Gene Therapy Web sites:

American Society of Gene Therapy
 www.asgt.org

Gene Almanac
http://vector.cshl.org

Blood Safety Web Sites:

ABRA (association representing the Source Plasma collection industry)
www.plasmainfo.org

American Society of Hematology
www.hematology.org

American Society of Pediatric Hematology/Oncology
www.aspho.org

U. S. Food and Drug Administration, Center for Biological Evaluation and Research

http://www.fda.gov/cber/

United States Department of Health and Human Services; Advisory Committee on Blood Safety and Availability

http://www.hhs.gov/bloodsafety/


Blood Recall/Withdrawal (CJD)
http://members.aol.com/debbieoney/blood.htm


FDA's Blood Products Hot Line
www.fda.gov/cber/recalls.htm

National Notification Center
www.notify1.com

Other Health Related Web Sites:

The Genetic Alliance
www.geneticalliance.org


HealthFinder
www.healthfinder.gov

Mayo Clinic
www.mayoclinic.com/index.cfm


MedicAlert
www.medicalert.org



MEDLINEplus
www.nlm.nih.gov/medlineplus



National Organization for Rare Disorders
www.rarediseases.org