January

 

To raise awareness about Victory for Women NHF teamed up with musical artist, Jessica Rae, and original songwriter, Tom Jordan, to create the official Victory for Women song and music video. The video also features pictures from our 2011 calendar showing photographs of women with bleeding disorders and our maroon victory scarf symbolizing unity among women with bleeding disorders.

 

Victory For Women with Blood Disorders
 

Victory for Women with Blood Disorders
Victory for Women with Blood Disorders

We are proud to announce our new women’s health and bleeding disorder initiative --Victory for Women with Blood Disorders, an endeavor that builds upon and expands the former Project Red Flag. With the assistance and expertise of volunteers on our education/outreach committee, public awareness committee, and the National Hemophilia Foundation’s (NHF) Medical and Scientific Advisory Council (MASAC), the Victory for Women with Blood Disorders program will incorporate education, advocacy, and support for women diagnosed with a blood disorder as well as raising awareness among women who have not yet been diagnosed

Victory for Women with Blood Disorders Initiative 2010 – 2011

Awareness and Education

  • Women 18-25 years old who are symptomatic but have not yet been diagnosed
  • Mothers of teenage daughters who may have symptoms but have not yet been diagnosed
  • Healthcare providers and others who do not know how to identify a girl or woman with acute symptoms of a bleeding disorder

Support

  • Women 18-25 years old who have questions or concerns about accessing medical and/or Support services
  • National Hemophilia Chapters serving women in their communities
  • Community health organizations interested in partnering to improve the health of all girls and Women

Advocacy

  • Empowering women to seek accurate diagnosis and healthcare

V4W Current Projects

  • Marketing campaign and other activities to raise awareness for women not yet diagnosed
  • Chapter grants to support programs for women with bleeding disorders
  • Training for chapter staff
  • Building relationships with community health organizations
  • Scholarships for women with bleeding disorders
  • Web page with information and resources
  • Participation at health professional conferences